Chaptacular 2017 aims to set new fundraising record

The legacy of the Nelson family is multidimensional with roots in the health-care business and an interesting evolution into chainsaws and fundraising for an orphan disease.  

Cystic fibrosis is a familiar name but it is categorized as an orphan disease with others, such as Lou Gehrig’s disease and Tourette’s syndrome, that may have high name recognition but affect fewer than 200,000 people nationwide.

The number of people in the U.S. with CF is estimated at 33,000, which means less government money is allotted to it for research and treatment.

Luke Nelson was diagnosed with CF in 2007 at the age of 11. At the time his parents, Stelling and Sandy, knew nothing about the disease, but that changed quickly.

The parents immersed themselves into everything about it, including who was doing what to find treatment.

Stelling said they discovered the Cystic Fibrosis Foundation and immediately embraced it because of the organized approach to treatment, research, new drugs and the ultimate goal, a cure.


The Jones County News

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